iowacarcinoid

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We MUST raise awareness!

on March 26, 2012

It is so upsetting and frustrating to see people’s carcinoid cancer progress or “come back” – only because of ignorance among drs about this kind of cancer! Too many drs take the tumors out and tell their patients “you’re cured!” or only follow up with them for the standard 5 yrs. That is NOT how you treat our cancer!!! It’s MUCH more complicated than that! Patients must be followed for 10 yrs, and all tumor markers and scans must remain normal for 10 yrs before any dr can claim that we are cancer-free. Too many patients are being misinformed, then coming back 2, 5, 10 yrs later with their carcinoid cancer worse than before!  We MUST raise awareness among the medical community and patients!

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