iowacarcinoid

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Turning Nonprofit!

on August 20, 2013

This is HUGE for our group!

When I’m having good days, we’ve had a lot of things going on. I’m working on turning our little state of Iowa support group into a 501c3 Nonprofit Cancer Charity! This will allow us to raise money for Support, Education, and Awareness (SEA). So many people are mis-diagnosed for an average of 5 to 6 years. By the time they are correctly diagnosed, most patients are stage 4 and not curable. It’s so important to get the information out to the Medical Professionals as well as the general public. There are 13,000 newly diagnosed patients every year, with thousands more continuing to be misdiagnosed.

We will be becoming more active as a group.  Just recently, we had a member meeting/lunch with Dr. O’Dorisio.  We had a Q&A with him for almost 3 hours!

Because it is so important for both Medical Professionals and the general public (possible patients) to be aware and educated about NET and Carcinoid Cancers, we will be making a stronger effort on November 10th, “Worldwide NET Awareness Day” to get the word out about  these types of cancer.

I hope things are going well for all of you! You’re always welcome to visit with us. And if you are in Iowa, you are welcome to join our interactive Facebook group!

My best,

Jennifer Holm

Iowa Carcinoid Cancer Connection

iowacarcinoid@yahoo.com

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2 responses to “Turning Nonprofit!

  1. zwanny63 says:

    That’s fantastic!

    Well done!

    I’m sorry to have missed the dinner, but was having a great time in Oslo.

    Hope you are feeling better!

    Mark Zwanziger 447917033135 Zwanny@hotmail.com Sent from my IPhone

    • Thanks Mark!

      I’m still working on all of the paperwork. Fingers crossed that it will all go through OK. Would love to meet you the next time you’re back in Iowa.

      Thanks!
      Jen

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