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Do you have IBS or Crohn’s?

on September 1, 2013

If the answer is YES, then you NEED to know the symptoms of Carcinoid Syndrome.  The majority of Carcinoid cancer patients are misdiagnosed for 5 to 6 YEARS with
IBS or Crohn’s before getting the correct diagnosis.  Unfortunately, during that time, our cancer spreads.  Most of us are at stage 4 by the time the doctors figure out that they had misdiagnosed us.


Carcinoid Syndrome Symptoms:

* Skin flushing/feeling suddenly hot – you may look sun burnt on your face, neck, and/or chest

* Heart palpatations – feeling your heart beating

* Heart rate increases/blood pressure decreases

* Feeling nauseous and dizzy all of the sudden

* Feeling like something is “wrong”

* Followed soon-after by diarrhea (either mushy or watery) – lots and lots of it

Many things can cause Carcinoid Syndrome to flair up, such as:  stress, seeds, nuts, dairy, many types of foods.

I knew for a long time that something wasn’t right with my body, but the drs couldn’t find anything.  I got tired of going to drs and going in for tests and finding nothing.  In the fall of 2009, I started getting episodes of stomach pain.  I figured that it was probably an ulcer or gall stones.  So, I  blew it off for several months.  By the end of December 2009, I had the worst episode of pain yet.  It felt like I had been hit in the stomach with a baseball bat.  I scheduled a dr appointment with my gastrointestinal (GI) doctor for early January.  After a few tests and some sample medications that didn’t work, my CT scan came back.  The CT scan showed a “slight thickening of the terminal ileum wall”.  That’s the area where the small intestine turns into the large intestine.  My GI dr said that she thought she could r each that area during a colonoscopy.  It was further than they usually go, but she felt she could reach it and biopsy the area.  The biopsy came back as Carcinoid Cancer.  I had been misdiagnosed for 6 years with IBS.  I had never heard of carcinoid cancer or carcinoid syndrome.

It only takes a couple of easy tests.  A blood test to check your Chromagranin (CgA) levels and a 24 hr urine collection test to test your serotonin levels.  Some places are equipped to test your blood serotonin levels.  It’s EASY to get tested.  It’s better to find it and treat it before it gets out of hand.



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